Dec 15, 2009

We did it!!

Well December 10 came and at 2pm we met with the MDT Panel to discuss Logan receiving specialized services. We told the panel about Logan and his challenges. They asked us a few questions and the meeting was done. They told me I most likely would not hear back for a few weeks or after the new year. I was really nervous. I felt it went really well. We continued on with our day as normal. When the phone rang at 4:30 and it was our case worker telling me they gave us pretty much everything we asked for I was thrilled. She told me what a great job we did discribing Logan. She was surprised at the speed of the response and she said she had never had a response that fast. We are so excited and relived that this process is over for at least a year. I have been told now that he is in the system it should run smoothly each time his contract comes up. If there is one thing I have learned through it all is that nothing will run as it should. The meetings we have had with Logan's developmental aide have been great. We will continue these through the holidays then start his specialized services in the new year. I look back and can't belive it took us a year to get this far. I still don't understand why it takes this long. I have had many people say to me "how do you keep fighting". I tell them this is my son I would do anything for him, then I think of Dr Suess. "Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength.” Hope you are all getting excited for the holidays but I am sorry to say that I just got the best present ever.....a future for Logan!

Dec 9, 2009

Therapy


Well Tuesday was Logan's first day of therapy. J (his therapist) played with him on Tuesday to see how Logan reacted to different play styles and where his interests were. It is so neat to see how they pick up on things many people do not see. She has given us many ideas on things to work on through the day. I was happy to see that Logan took to her right away. It was refreshing to hear positive feedback on things Logan is wonderful at. She was amazed by Logan's memory. When she returned on Wednesday he remembered exactly what they played and how they played it. Tuesday he was very upset with the transition between games/toys by Wednesday she figured out how we could work with him to transition with out tantrums. It will be interesting to see how Ruby takes to all the attention in the home around Logan but I am going to find special projects for her to work on when Logan is in therapy. There will be a time when they would like to work with both kids to teach Ruby to play with Logan functionally but for now they need to work with him alone. The part of ABA therapy that I love is that the family is incorporated into the therapy and we are taught along with Logan. I am so proud of him. This is the first step on our way towards recovery and we are so excited.

Tomorrow is our MDT meeting to see if Logan will get specialized services. It is a very important meeting and I am hoping that all will go as planned. I have a wonderful positive feeling but am still nervous. I will let you know how it goes....

Dec 4, 2009

Santa Visit

Well lots has happend since I wrote last. We got Logans test results back for his Celiac biopsy and it is clear for now. He and Ruby will need to be checked in a year but he is not showing signs of damage.

Logan's therapy will be starting on December 7th will will have a developmental aide in our home for a few hours at least twice a week. Our MDT date will be on December 10 to get more specialized services for him but at least something is happening.

Logan and Ruby went to visit Santa at the Mall on Wednesday. I was worried that he would not sit with Sanata or act up. He did GREAT he went right up and sat on Santa's knee and said "cheese". Once he realized Santa had candy they were BFF's. He even ran back to give Santa a hug then he said "see you soon". He surprises me more and more everyday. I think it had a lot to do with Ruby building him up about sitting with Santa and being such a great example. Aunt B also sat with him at first and had her picture taken (that helped).

We are looking forward to some down time over the holidays and getting started with Logan's therapy. It has been a really long road and it is starting to pay off. We are so proud of Logan and the progress he has made and look forward to the future.

I must tell everyone that we went to Ruby's Student Led Parent/Teacher Conference and we were amazed at all the things she was able to show us. She was able to translate the french to english for daddy. It was amazing, she is amazing!